Flex Grant Program
Thank you for your interest in The Susie Foundation’s Flex Grant Program. Our mission is simple: to ease the financial burden of living with ALS for patients and families across New England.
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Through this program, we provide direct financial assistance to help offset out-of-pocket expenses that are not traditionally covered by private insurance, Medicare, Medicaid, or other assistance programs.
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Eligible applicants may receive:
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Up to $2,000 per quarter
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Up to $3,000 per calendar year​
How the Flex Grant Program Helps
The Flex Grant Program provides reimbursement payments to cover a range of essential costs related to ALS care.
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Eligible expenses include:
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Medical equipment & assistive technology (e.g., power wheelchairs, communication devices)
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Home modifications (e.g., wheelchair ramps, stair lifts, accessible bathroom modifications)
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Healthcare services (e.g., home health aides, skilled nursing, respite care)
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Clinic co-pays & prescription costs for ALS-related treatments
Who Can Apply?
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Residents of New England with a definitive ALS diagnosis
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Applicants must complete and submit a full application, including required documentation
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Grants are awarded quarterly based on fund availability
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Priority is given to:
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First-time applicants
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Those experiencing severe financial, medical, or caregiving hardships
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At The Susie Foundation, we are committed to helping ALS families find relief and support. If you or a loved one could benefit from financial assistance, we encourage you to apply.
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Questions? Contact us at: Ryan.Matthews@TheSusieFoundation.org
Apply Now: www.bit.ly/tsfflexgrant
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You are not alone. We are here for you.
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Program Forms & Policies
Program Information & Guidelines
This is your one-stop shop for everything related to Flex Grants. This document, which can be downloaded by clicking the icon to the left, will introduce you to the grant application process, important dates to remember, eligibility criteria, and everything else you need to know about Flex Grants.
Products and Services Eligible for Reimbursement
This short, straightforward document outlines most of the products and services that are eligible for reimbursement funding as a part of our Flex Grant program.
Our e-application helps to make the process of submitting for a Flex Grant incredibly easy. Simply click the icon to the left for a direct link to our application and start your application today!
Verification of Diagnosis Form
Attention first time applicants! Please ensure that this form - which can be signed by your physician, neurologist, or social worker - must be completed and accompany your e-application.
Looking for more info on the program, or just want to spread the good word to someone who might be able to benefit? Feel free to click, download, save, and share this flyer for a helpful reminder or introduction to our Flex Grant Program!
Questions?
