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About The Susie Foundation

The Susie Foundation is a 501(c)(3) non-profit organization focused on changing the lives of young caregivers and families struggling with the daily challenges of living alongside Amyotrophic Lateral Sclerosis (ALS). Since our founding in 2013, we have raised more than $550,000 to provide innovative programming opportunities that deliver compassionate, enduring, and life changing support services to patients, young caregivers, and families living with the challenges of ALS in New England.


The roots of our work can be traced back to November 6th 2009, the day our organization’s inspiration and namesake, Susan Ready Matthews, was

diagnosed with ALS. Over the next 17 months, our family became intimately

and painfully aware of how challenging and traumatizing daily life is

alongside ALS. From the loss of physical ability and introduction of

anticipatory grief, to the struggles with depression and need for around the

clock caregiving, Susan’s journey with ALS taught us about the many burdens levied on individuals and families following diagnosis, while strengthening our resolve to provide support to others impacted by the disease.


Since her passing on April 17th 2011, we have been working tirelessly to build on Susan’s legacy of service to ensure patients, young caregivers, and families can access life-enhancing support services and technologies to ensure they are best able to lead rich, meaningful, and productive lives. 

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Susan Ready Matthews and her son Ryan (photo taken in 1994).

The Specifics 

Our Board of Directors. From L to R: Mike Stankus, Aaron Smith, Lisanne O'Reilly, Chris Hershey, Neil Matthews, Andrew Shannon, Mandy Roberts, Ben Kozera, Eric Turmel, and Sam Grenus. 

From the Press

Jordan E. Grice, Citizen’s News - August 13th 2016
Jordan E. Grice, Citizen’s News - August 13th 2016
Angie DeRosa, The Hartford Courant - July 23rd 2016
Jordan Otero, The Republican-American - March 1st 2015